Thursday, November 11, 2010

FASD and suicide

There are many aspects of the topic Indigenous people that I would like to talk about but I would like to focus my attention on two main ideas, Fetal Alcohol Syndrome (FAS) or also known as Fetal Alcohol Spectrum Disorder (FASD) and suicide in Aboriginal children and Aboriginal communities. I have had the unfortunate experience working with children with severe (FASD) and children facing suicide/suicidal ideation on a daily basis through the ‘system’ with Children and Family Services in Ontario. FASD is a term that “describes a range of disabilities that may affect people whose mothers drank alcohol while they were pregnant.” This lifelong disability has also been called the ‘invisible disability.’ Suicide is suffered by its victims who decide to take their own lives, families and friends and unfortunately it is most commonly occurring in aboriginal communities. The statistics are alarming.


In my opinion, I think the awareness needs to start with women who are at the child bearing age about drinking during pregnancy and FASD is incurable! Too many children are encountering health problems that affect every aspect of life such as mentally, physically, behaviourally and emotionally throughout their lives right from birth. These children have a setback in life right from the first breath they take from no fault of their own. The Public Health Agency of Canada reported that approximately 1% of people living in Canada or about 300,000 people are living in Canada today with FASD.


Although it has been reported that there are no statistics to date for how many aboriginal children or adults have FASD, Paul Masotti et al. (2006) reported in Preventing Fetal Alcohol Spectrum Disorder in Aboriginal Communities: A Methods Development Project that “not surprisingly, FASD is more common in communities with high prevalence rates of drinking, such as some Canadian Aboriginal communities.” In aboriginal communities, the Canadian Community Health Survey observed that “16.1% of women in the 15–44 age group, and 26% in the 20–24 age group, reported binge drinking 12 or more times in the previous year.” Binge drinking is important to note because it often leads to women continuing to binge drink while pregnant. “The Ontario First Nations Regional Population Health Survey indicated that significantly more Aboriginal females reported binge drinking than their counterparts in the general Canadian population.

Although the statistics may be alarming, I have failed to look at FASD through a social work lens which is why I am adding the following paragraphs in to see the difference on how an ‘outsider’ may see this problem and then from the lens of a social worker. Reading over the comments from this blog, I’ve realized that when looking through the social work lens, there needs to be focus on how to solve this problem and it is not about pointing fingers at the mother. The focus needs to be on helping Aboriginal people heal in their communities when they have suffered for so many years. Silvia points out a good point in her comment that we need to help women, children AND men heal from the traumatic events that have happened either in their lives or problems in their family that has resulted in them suffering.  Yes, everyone knows there is a problem but we now need to come up with solutions on how to fix this problem.

Fetal Alcohol Spectrum Disorder (FASD) Prevention: Canadian Perspectives explains four different levels of how we can start with just basic awareness and then gradually work at the prevention area. The Public Health Agency of Canada reported that "in Canada over the last decade, health promotion and prevention specialists have been learning about how to prevent FASD using multi-sectoral, holistic approaches. Beyond advice to not drink while pregnant, these newer, holistic approaches have demonstrated that helping women plan their pregnancies, obtain prenatal care, improve their nutrition, reduce stress in pregnancy and heal from root causes of addiction such as experience of violence – all contribute to improving women’s health and reducing the risk of having a child affected by FASD." (Poole, N 2008)

I believe that we do need to also focus on healing but just as much on prevention because the cycle will only continue. The healing process it not easy and according to Mabel Nipshank (2001) who did a report called Aboriginal Women: No Rights to Land or Children she reported that:
As a result, Aboriginal Women attempting to escape violence are often forced out of the family home and community and into cities, where they encounter a multitude of systemic barriers. They are constantly being re-victimized by racism in the system. Aboriginal Women are often forced to live in extreme poverty and with these additional barriers it is almost impossible to fight for Child Custody and Access rights. The Social Development Department within a band is modeled after the child protection act, and the ‘best interest of children’ is seen through this lens - usually who has access to family home, extended family, and to traditional culture and financial stability. The patriarchal structure of today's band policies entitles men to all of these, leaving women with few resources. The residential school syndrome and the destruction of the matriarchal system have led to the normalization of violence. Men can have a history of wife assault but their right to child custody and access is never questioned. Allegations of child sexual abuse are being dismissed, without investigation, as false and vengeful charges. Mothers have lost custody of their children because they dared to breach a court order by refusing unsupervised visits with fathers who have abused the children. Custody and access issues expose the true values of our society. We need a society based on fairness, and a system, which accounts for the real social, political and economic realities for Aboriginal women. We need to put the safety of women and children first.”

While suicide can be tied in with mental health, suicide is not recognized as a psychiatric disorder but as an action or behaviour. I believe this can be tied in with physical disabilities because dating back from the residential school days, Aboriginal children were taken from the home and put through a great deal of abuse and neglect. Now, if you throw a physical disability into the mix of your culture being stripped from you, alcohol, drug and sexual abuse in your family etc, you are already under a great deal of stress trying to cope with a physical disability. Aboriginal people with a physical disability may feel overwhelmed and hopeless that they cannot provide for themselves or others and feel that life is not worth continuing. This is not equality and no one deserves to be treated or to be made felt this way. For every suicide victim, how many Aboriginal people make suicide attempts, are depressed, experience anxiety and want to end their life? I can only imagine that the number is very high and again we need to focus on prevention, prevention, prevention! In a study that is being done in Manitoba by the Swampy Cree Suicide Prevention Team called Community-based Suicide Prevention Research in Remote On-Reserve First Nations Communities (2009), it states that “while the process employed for this study may not be unique in regards to Aboriginal health research, it is to our knowledge the first of its kind for a suicide prevention project in Manitoba and perhaps Canada. This is very shocking to see that it is the first of its kind. In working with children and adults in a hospital, I’ve seen that many suicide attempts are not only a mental health issue but can turn into a physical disability. Areas in the brain can be affected from an overdose or by attempting to hang themselves which may affect areas of the brain that cause specific muscle movements or permanent nerve damage to limbs.

Laurence J. Kirmayer et al. (2007) reported in The Aboriginal Healing Foundation- Suicide Among Aboriginal People in Canada that the “overall suicide rate among First Nation communities is about twice that of the total Canadian population; the rate among Inuit is still higher— 6 to 11 times higher than the general population. For Aboriginal people, suicide is an affliction of the young. From the ages of 10 to 29, Aboriginal youth on reserves are 5 to 6 times more likely to die of suicide than their peers in the general population. Over a third of all deaths among Aboriginal youth are attributable to suicide.”

In conclusion, although FASD seems to be more apparent in Aboriginal communities and Aboriginal children, there are no statistics to date to give an approximate number of people living with this disability. It is most shocking to me that there are many clinics to diagnose FASD children and many resources for looking for the signs in young children but where is the prevention? There is not enough emphasis on the prevention of Fetal Alcohol Syndrome in Aboriginal communities and it needs to be addressed. As for suicide in Aboriginal people, especially youths, you can see that indeed the statistics are alarming. There needs to be more focus on prevention and support in both FASD and suicide and not just after the fact. This needs to be a continuous process from the government and the government needs to continue their part in what was created from the horrible historical events of residential schools.


References:


Isaak et al., C. (2009). Community-based suicide prevention research in remote on-reserve first nations communities. International Journal of Mental Health and Addiction, 8(2), doi: 10.1007/s11469-009-9250-0

Kirmayer et al., L. (2007). Aboriginal healing foundation: suicide among aboriginal people in canada (Adobe Reader), Retrieved from http://www.ahf.ca/publications/research-series

Masotti P, George MA, Szala-Meneok K, Morton AM, Loock C, et al. 2006 Preventing Fetal Alcohol Spectrum Disorder in Aboriginal Communities: A Methods Development Project. PLoS Med 3(1): e8. doi:10.1371/journal.pmed.0030008

Tiffany

12 comments:

  1. It is very sad to hear that so many Aboriginal people take their own lives. It seems to me that many people just don't care enough not to drink when they are pregnant. This could be due to the fact that they have no idea the harm they are causing, or maybe it just doesn't bother them. Either way this is a very disturbing reality. I have seen many children in foster care with FAS, and it just breaks my heart to know that their disability could have easily been prevented. I definitely agree that there needs to be much more awareness about drinking while pregnant. All we seem to hear about now-a-days is drinking and driving. We all know this is wrong, yet they continue to drill it into our heads. Maybe the government should spend as much time advertising the dangers of drinking while pregnant as they do advertising the dangers of drinking and driving, and maybe we will be able to prevent a disability for lifetimes to come!

    -Amanda P.

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  3. "No amount of alcohol is okay during pregnancy" I 100% agree. There are so many women who say their doctor told them one beer or one glass of wine won't hurt. Or as long as they wait until after the first trimester a glass will be fine here and there. There are also so many women who figure that because their friend's child turned out fine their baby will too. That is not at all the case. One sip can change the unborn baby's life forever. The suicide of aboriginal children is disturbing as well. They are already being judged and put down for their background by most, they don't need this on top of it all.
    And for the comment above about spending the same amount of time for advertising against drinking&pregnancy... I don't think it would make much of a difference. People haven't even grasped the fact that drinking&driving is deadly.

    Brittney

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  4. It it shocking to hear the statistics you provided about Aboriginals and their high suicide rates. It is hurtful to hear that many youths are committing suicide, among the Aboriginal community; especially because they are so young. As for FASD, I did not know that 1% of the Canadian population had FASD. I definitely agree with you, no amount of alcohol is safe during preganancy. Unfortunaetly many Aboringials are judges by others in society; even those who don't live on reserves judge the one's that do. It would be great if prevention programs would come into a greater affect. I am sure that some use the prevention programs, for both preventing FASD and suicide. But the high rates indicate there is not enough awareness and help among the Aboriginals.

    Ashley R.

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  5. Ya you guys are exactly right! I never thought about the comparison with advertising drinking and driving and women drinking during pregnancy. Drinking during pregnancy should be advertised just as much if not more. I also think that if Canada had the statistics to show how many children are diagnosed with FAS or FAE (fetal alcohol effects)in Aboriginal communities, it would be an eye opener for the government and society to promote more awareness and prevention. FASD is 100% preventable.

    Tiffany

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  6. It is also disturbing that in the news recently (around thanksgiving) they were saying that a drink or two a week could actually make your child more intelligent. I was so upset to hear this because I feel that researchers got ahead of themselves and immediately thought that mild drinking such as red wine while pregnant makes your baby smarter. When in reality they probably only found a correlation. The correlation would also make sense, saying that people who can afford to drink red wine once or twice a week can probably afford better education for their children. As scary as this is, it sounded like they were advertising having a drink once or twice a week when your pregnant. I hope other people saw this news report too.

    -Avery F

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  7. That is extremely sad and unfortunate that many aboriginal children are born with FAS. I used to believe that many aboriginals were alcoholics because they wish to be and believed they got what they deserve. I know now however by taking this social work course that you do not realize what many aboriginals may have faced with in the past weather it be their ancestors, relatives or family, many of which were in the residential schools. This too may contribute greatly to the facts stated about aboriginals and FAS.
    Autumn B.

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  8. I also heard that too Avery! I wasn't sure when it was but I was shocked to hear it on the news. It was like they were advertising that having a glass of red wine a week is healthy for your baby. Instead of preventing women from drinking during pregnancy, it's like they are promoting it! This was just posted in October 2010 on medscape.com that "light or moderate alcohol intake during pregnancy did not increase the risk for clinically relevant behavioral or cognitive problems in infants at 5 years of age." Why would anyone want to promote drinking during pregnancy?! It's a recipe for disaster.

    Tiffany

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  9. My mom always complains about how many aboriginal people in general seem to be alcoholics. In my opinion white people are just as likely to drink during pregnancy, or in general as an aboriginal person. It just isn't broadcast as much because nobody sees it as a big deal. Aboriginals are stuck with the stereotype of being alcoholics so of course it will be talked about more.
    If scientists are giving the okay to drink during pregnancy they might as well just roll a joint for pregnant women as well.

    Brittney M

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  10. Yes it was very disturbing news to hear, and it was aimed at being new and exciting breaking news! Very scary.

    Also, going on what Brittany just said about aboriginals and alcoholics, I hear the same thing all the time. Many people think or say "Oh look another drunk aboriginal person", but rarely do people point out when they see drunk white people, or sober aboriginal people. When people have stereotypes, that is usually the only thing they see; they tend to ignore all other information that is disproving their stereotype, and only accepting the information that is supporting their stereotype.

    -Avery F

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  11. I'm enjoying seeing you all reflect on this topic, engage with each other, and try to connect it with the course material. To help you do so, I'd like to repeat my comments from a previous post.

    FASD is one of the many outcomes of the harm of colonization on Indigenous people. You cannot tease apart the impact of Indian Residential Schools, the lack of drinking water in some communities, the lack of access to nutritious and affordable food, the post-traumatic stress disorder and depression, the ongoing and multiple processes of colonization... and problem alcohol drinking.

    If we only take an individualistic lens on this issue, we see a mother drinking alcohol who ends up with a baby with FAS. If we blame that mother, then the rest of us have clean hands and nothing to do with the issue. But our government's policies historically AND in the present, create untenable living conditions where some people turn to alcohol to survive their lives.

    Blaming mothers will not solve this problem. The root conditions need to be changed. And we all have a role in that. Until those root conditions are changed, it becomes difficult to make much headway on the problems that arise due to colonization.

    We also need to understand how all the impacts of colonization are interconnected. For example, depression, post traumatic stress disorder, violence, and substance abuse are among the many interconnected impacts of colonization.

    Yes, the mother does have personal responsibility. But if we only look at that, we will never solve the problem. We need to make it possible for men and women to heal at all levels, which will include healing from substance abuse.

    I hope this helps to further connect your ideas on this with the frameworks of the course.

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  12. Hello everyone, I must point out that I have added some very important points in my blog. Looking back over my blog I realized how much I was tending (not intentionally) to 'blame' the mothers for FASD and Silvia did a wonderful job of opening my eyes to this. I realize that when I first wrote this blog post that I was not looking at the situation through the lens of a social worker. I have kept my paragraphs in my blog from the original one but I wanted to point out on how an 'outsider' may see the problem and then look at it from the social work lens. With doing some research and reading, it is not about playing the blame game and it is more of the focus on healing Aboriginal people for what they have gone through. I do believe that we still need to focus on prevention to prevent the cycle from continuing from we need to also focus on healing these people who have been traumatized all their lives.

    Tiffany

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